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  • Patient support Find a support group Setting up a support group Patient resources Parent & Caregiver Guide Mental health and wellbeing support Transition to independent living Financial assistance Advocating for yourself and others
  • About rare disorders What is a rare disorder? Facts and figures New Zealand's Rare Disorders Strategy Impact of Living with a Rare Disorder Rare disorders in New Zealand Stories project Clinical resources Rare Disease Day
  • About RDNZ What we do Rare disorder collective News Partners and Supporters Round Table of Companies Our People Submissions Newsletters Research Network Clinical Advisory Panel Events
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WITHDRAW ON GATEIO

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GATEIO TRADINGVIEW

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A collective voice for people living with a rare disorder

Find a group

Search our support groups to find and connect with others.

Hear our stories

Learn how rare disorders have impacted people's lives.

Get involved

Donate, volunteer, or join one of our campaigns.

RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

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To champion and amplify the collective voice of New Zealanders with rare disorders, advocating for access to world class and world leading health, disability, education and other services.

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Best possible health and wellbeing for people and whānau living with rare disorders in New Zealand/Aotearoa

 

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16/08/2024

Biennial Support Group Lead Hui
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25/07/2024

Rare disorder community celebrates Aotearoa’s first Rare Disorders Strategy
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22/07/2024

RDNZ invited to release of Letter of Expectation to Pharmac
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Contact Details

Rare Disorders NZ
PO Box 7081
Newtown
Wellington 6242

Phone: 0800 RARENZ (0800 727369)
Office: 027-250-0619

Registered Charity CC22512

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